The first part of the study, the PERFORM
Intervention Development Study, involves working with people who have
experience of living with long-term conditions AND their caregivers, to develop
an intervention programme. This will include exercise,
alongside other support to manage the conditions and improve quality of life.
The researchers think this will help people with long-term conditions to
increase their stamina and balance, maintain their independence and to enjoy
better physical and mental wellbeing.
To
help them develop a programme of support, the researchers want to form a Lived
Experience Advisory Group consisting of people with a diverse range of
experiences of living with long-term conditions AND family or friends who have
a substantial role in supporting them. This group will
meet between
six and eight times with the research team
over an 18-month period to advise on what the intervention needs to include.
The meetings will be held at the University of Birmingham.
If you would like to find out more about this project
further, please contact the researchers by email at p.daw@bham.ac.uk including your contact phone number and a
preferred time to call. Or, you can call Paulina Daw from the University of
Birmingham on 0759 555 0720.